Are there support groups for Klinefelter syndrome?

Are there support groups for Klinefelter syndrome?

AAKSIS (pronounced “access”) is a national voluntary organization with the mission of education, support, research and understanding of XXY and its variants, collectively known as Klinefelter syndrome.

What are the greatest life challenges for a person with Klinefelter syndrome?

Klinefelter syndrome may increase the risk of: Anxiety and depression. Social, emotional and behavioral problems, such as low self-esteem, emotional immaturity and impulsiveness. Infertility and problems with sexual function.

Is Klinefelter syndrome considered a disability?

If you or your dependent(s) are diagnosed with Klinefelter Syndrome and experience any of these symptoms, you may be eligible for disability benefits from the U.S. Social Security Administration.

How can we help people with Klinefelter syndrome?

Treatment for Klinefelter syndrome is based on signs and symptoms and may include:

  1. Testosterone replacement therapy.
  2. Breast tissue removal.
  3. Speech and physical therapy.
  4. Educational evaluation and support.
  5. Fertility treatment.
  6. Psychological counseling.

What is everyday life like with Klinefelter syndrome?

They may tend to be quiet, shy, and more reserved or sensitive than other guys. Some boys with Klinefelter syndrome are less interested in sports or physical activities. Since high-school life often revolves around schoolwork and sports, guys with Klinefelter may feel like they don’t fit in or lack self-confidence.

Are there any support groups for XYY syndrome?

47 XYY Syndrome Support Group | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program.

Does Klinefelter syndrome get worse with age?

In males with Klinefelter syndrome (KS, non-mosaic karyotype 47, XXY), which is the most common sex chromosome aneuploidy, age-related morbidity and mortality are increased, and a significantly reduced life span has been observed.

What are some interesting facts about Klinefelter syndrome?

Boys with Klinefelter syndrome might have some or all of these physical signs:

  • a taller, less muscular body than other boys their age.
  • broader hips and longer legs and arms.
  • larger breasts (gynecomastia)
  • weaker bones.
  • a lower energy level.
  • smaller penis and testicles.

Are there any treatments for Klinefelter syndrome?

Although there’s no way to repair the sex chromosome changes due to Klinefelter syndrome, treatments can help minimize its effects. The earlier a diagnosis is made and treatment is started, the greater the benefits. But it’s never too late to get help.

Can you build muscle with Klinefelter syndrome?

This can help someone with Klinefelter syndrome develop bigger muscles, a deeper voice, growth of the penis, and facial and body hair. It also can help improve bone density and reduce any breast growth.

What is the prognosis for Klinefelter syndrome?

Prognosis. Much of the early literature about Klinefelter’s Syndrome (KS) mentions the high proportion of KS males in the prison population and of low IQ. These old medical books often paint a rather bleak picture. However it is now accepted that, although many with the condition do have some learning difficulties, with appropriate support

Can person with Klinefelter syndrome have kids?

Some men that have mosaic Klinefelter syndrome may be able to produce working sperm and therefore have biological children. Meeting with a reproductive specialist or genetic counselor can help you learn more about your options.

Is there a cure for Klinefelter syndrome (KS)?

What treatments are available? There is no cure for Klinefelter Syndrome (KS). However there are treatments available for the problems associated with the condition. For some men with KS who have no sperm in their semen, it is possible to take sperm directly from the testes with surgery called microscopic testicular sperm extraction (microTESE).

What are the cognitive features of Klinefelter syndrome?

Testosterone replacement: About half of people with SK have low testosterone levels,which may be raised by taking supplemental testosterone.

  • Breast removal or reduction surgery.
  • Educational interventions: As children,many people with Klinefelter syndrome qualify for special services to help them in school.